DupMECP2

Our organization is dedicated to fighting MECP2 Duplication Syndrome and improving the lives of those affected by this rare disorder.

DupMECP2 was founded in 2022 by Caroline and David Covini following their son Matteo’s diagnosis. As scientists in the pharmaceutical industry and parents of an affected child, they recognized the urgent need to create a strong, united global community to expedite research for a cure and support families facing similar challenges.

At DupMECP2 we are building a network of doctors, scientists and families. We firmly believe that by bringing all MDS experts together, we can increase understanding of the disease, accelerate research for a drug and provide much-needed daily support for all.

In addition to this goal, our team's activities are very diverse: we raise awareness of MDS by organizing events, raise funds to support families and research, and ensure that the community stays informed about scientific advances.

Registration No. 1165516180

http://www.dupmecp2.eu