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Make dreams come true for DupMECP2 children

Make dreams come true for DupMECP2 children

Make dreams come true for DupMECP2 children share image This page is closed for public contributions.

German and French version below
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This holiday season, let us light up our children's lives together! Our association is dedicated to helping children affected by MECP2 Duplication syndrome. We work continuously to support families, raise awareness about this rare and devastating disorder, follow-up and make accessible scientific advancements, fund research projects, and bring clinical trials in Europe. We need your help to fulfill our missions and help families all around the world.
Learn more about us at www.dupmecp2.eu.

Here’s how you can help :
Join us by decorating our virtual Christmas tree. Each ornament placed in the tree allows us help children affected by MECP2 duplication syndrome. Our dream is to raise 15000€ to support families. We want to elaborate an ebook for families, create educational webinar about the disease and support the cost of therapies for affected children.
We need your help! Together, we can make this season not just magical, but also meaningful.
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In dieser festlichen Jahreszeit lasst uns gemeinsam das Leben unserer Kinder erhellen! Unser Verein setzt sich dafür ein, Kindern zu helfen, die vom MECP2-Duplikationssyndrom betroffen sind. Wir arbeiten unermüdlich daran, Familien zu unterstützen, auf diese seltene und schwerwiegende Erkrankung aufmerksam zu machen, wissenschaftliche Fortschritte zu verfolgen und zugänglich zu machen, Forschungsprojekte zu finanzieren und klinische Studien in Europa voranzubringen. Wir brauchen Ihre Hilfe, um unsere Missionen zu erfüllen und Familien auf der ganzen Welt zu unterstützen.

So können Sie helfen:
Machen Sie mit, indem Sie unseren virtuellen Weihnachtsbaum schmücken. Jeder platzierte Christbaumschmuck hilft uns, Kindern mit MECP2-Duplikationssyndrom zu helfen. Unser Ziel ist es, 15.000 € zu sammeln. Mit Ihrer Unterstützung können wir diese Jahreszeit nicht nur magisch, sondern auch bedeutungsvoll gestalten.

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En cette période de fêtes, illuminons ensemble la vie de nos enfants ! Notre association est dédiée à l'aide aux enfants affectés par le syndrome de duplication du gène MECP2. Nous travaillons sans relâche pour soutenir les familles, sensibiliser à cette maladie rare et dévastatrice, suivre et rendre accessibles les avancées scientifiques, financer des projets de recherche et mettre en place des essais cliniques en Europe. Nous avons besoin de votre aide pour remplir nos missions et aider les familles du monde entier.

Voici comment vous pouvez nous aider :

Rejoignez-nous en décorant notre arbre de Noël virtuel. Chaque ornement placé dans l'arbre nous permet d'aider les enfants affectés par le syndrome de duplication du gène MECP2. Notre rêve est de récolter 15000€. Avec votre aide, nous pouvons rendre cette saison non seulement magique, mais aussi mémorable.

DupMECP2 – Lasst uns MDS heilen

Published: 30 Nov 2024

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Beneficiary

DupMECP2 logo

DupMECP2

Charity no. 1165516180

www.dupmecp2.eu

Email: office@dupmecp2.eu

DupMECP2 logo

DupMECP2

Charity no. 1165516180

www.dupmecp2.eu

Email: office@dupmecp2.eu

Our organization is dedicated to fighting MECP2 Duplication Syndrome and improving the lives of those affected by this rare disorder.

DupMECP2 was founded in 2022 by Caroline and David Covini following their son Matteo’s diagnosis. As scientists in the pharmaceutical industry and parents of an affected child, they recognized the urgent need to create a strong, united global community to expedite research for a cure and support families facing similar challenges.

At DupMECP2 we are building a network of doctors, scientists and families. We firmly believe that by bringing all MDS experts together, we can increase understanding of the disease, accelerate research for a drug and provide much-needed daily support for all.

In addition to this goal, our team's activities are very diverse: we raise awareness of MDS by organizing events, raise funds to support families and research, and ensure that the community stays informed about scientific advances.