The Tumour Foundation of BC is working to improve the health of individuals affected by neurofibromatosis by establishing the province's first medical care clinic.
Neurofibromatosis, or NF as it’s more commonly known, is a genetic disorder that causes tumours to grow throughout the body. NF tumours can lead to deafness, bone deformities, learning disabilities, disabling pain, and cancer. There is no cure.
With no NF experts or specialized clinic available, patients are forced to become the experts in managing their own care. Can you imagine your doctor looking to you for answers and direction on how to treat your illness? That’s what patients experience every day after receiving an NF diagnosis.
After more than a decade of working towards establishing the province's adult NF medical clinic, we are in the home stretch of opening our doors this summer. With just a little help from you we can make a significant impact in the lives of patients and families with NF.
We invite you to make a donation and be a NF hero.
NF Medical Care Clinic
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Tumour Foundation of BC
Published: 26 Apr 2021
Beneficiary
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Tumour Foundation of BC Charity no. 131041352 RR 0001 Email: info@tumourfoundation.ca Tel: 800-385-2263 |
Tumour Foundation of BC
Charity no. 131041352 RR 0001
Email: info@tumourfoundation.ca
Tel: 800-385-2263
The Tumour Foundation of BC has been supporting individuals and families affected by neurofibromatosis (NF) for over thirty years.
NF is a genetic disorder causing tumours to grow in the body, brain and on the skin. There is no cure. More than two million worldwide live with NF.
We are a vital source of support and information for families on the NF journey. Our focus is to optimize the health of individuals with NF by improving medical services in our province through the establishment of the the first coordinated care clinic.
