At Alex TLC, we believe no one should face leukodystrophy alone. But right now, our resources are stretched thin.
Our services such as one to one support sessions, advocacy, peer support, online community meetings, counselling, grants, and our much loved Community Weekends, offer a lifeline to those affected by leukodystrophy.
This festive season, join us to Light Up the Sky - a campaign to raise the funds we need to sustain and grow our support services.
Thank you for helping us light the way forward for our community.
Light up the sky
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Alex, The Leukodystrophy Charity
Published: 24 Oct 2025
Beneficiary
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Alex, The Leukodystrophy Charity Charity no. 1106008 Email: info@alextlc.org Tel: 020 7701 4388 |
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy.
The charity was founded in 2004 by a mother whose two sons had been diagnosed with leukodystrophy. She recognised the severe lack of information and support available and wanted to make sure that no one had to face leukodystrophy alone.
Leukodystrophies are rare genetic disorders that affect the white matter of the central nervous system (ie the brain or spinal cord). They affect people of all ages and backgrounds, most notably children.
There are over 100 different types of leukodystrophy, which are usually degenerative and cause symptoms such as impaired mobility, vision, speech and hearing, incontinence and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan.
