Early diagnosis is so important for families with PWS but we know that in many parts of the world it is a real struggle. IPWSO is committed to providing free diagnostic testing for PWS to families in countries where this is not available. We have provided this service continuously since 2003 and have funded the testing of over 500 samples received from 47 countries so far.
Each test costs €200, please support our campaign to fund 30 tests this year.
IPWSO: supporting diagnosis worldwide
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International Prader-Willi Syndrome Organisation
Published: 23 Apr 2021
Beneficiary
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International Prader-Willi Syndrome Organisation Charity no. 1182873 Email: office@ipwso.org |
IPWSO's vision is a world where people with Prader-Willi syndrome and their families receive the services and support they need to fulfil their potential and achieve their goals.
We do this by working to unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.
