FOP Friends
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine. It causes bone to form in muscles and other connective tissues (such as tendons and ligaments), gradually locking healthy joints in place.
A healthy mind locked inside a frozen body.
FOP is an ultra-rare condition, affecting 1 in 1,000,000 people. There are currently around 70 people living with FOP in the UK.
While we are closer than ever to viable treatments, there is still crucial work to be done and we need your help.
Please be an FOP Friend by supporting our charity. Your donations are the difference between research continuing its momentum and stopping completely.
Even the smallest donation makes a huge difference.
Registration No. 1147704
