Light up our Tree of Hope for our Support Services.
Alex TLC is the UK’s only charity dedicated to providing crucial support for individuals affected by all types of leukodystrophy.
Our services such as one to one support sessions, advocacy, peer support, online community meetings, counselling, grants, and our much loved Community Weekends, offer a lifeline to those affected by leukodystrophy.
By supporting our Tree of Hope campaign, you’re helping us continue to deliver these essential services. Every contribution makes a meaningful difference.
Thank you for helping us light the way forward for our community.
Alex TLC's Tree of Hope
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Alex, The Leukodystrophy Charity
Published: 21 Nov 2024
Beneficiary
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Alex, The Leukodystrophy Charity Charity no. 1106008 Email: info@alextlc.org Tel: 020 7701 4388 |
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy.
The charity was founded in 2004 by a mother whose two sons had been diagnosed with leukodystrophy. She recognised the severe lack of information and support available and wanted to make sure that no one had to face leukodystrophy alone.
Leukodystrophies are rare genetic disorders that affect the white matter of the central nervous system (ie the brain or spinal cord). They affect people of all ages and backgrounds, most notably children.
There are over 100 different types of leukodystrophy, which are usually degenerative and cause symptoms such as impaired mobility, vision, speech and hearing, incontinence and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan.
