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Alex, The Leukodystrophy Charity

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Alex, The Leukodystrophy Charity

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Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by a genetic leukodystrophy.

Established in 2004 as ALD Life, we are an internationally recognised centre of excellence for those affected by adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN).

There are around 90 different known types of leukodystrophy, including some so rare they only affect one or two individuals.

The charity changed its name in 2019 to become the only charity in the UK that provides support for all those with a genetic leukodystrophy.

Registration No. 1106008

https://www.alextlc.org/

Charity Pages

  • Alex TLC's Tree of Hope share image

    Alex TLC's Tree of Hope

  • Stars in the sky on a snowy night. Large bright crescent moon in the sky. Snowman and deer on the snowy ground.

    Light up a star in memory of or in celebration of your leukodystrophy warrior

  • Alex TLC Easter Basket share image

    Alex TLC Easter Basket

  • Alex TLC Light Up for Rare share image

    Alex TLC Light Up for Rare

    2 pages
  • Virtual Christmas Tree in a snowy landscape decorated with stars and lights

    Alex TLC Christmas Tree